Resources
A compendium of available services
Find services, support and make professional connections.
BIND - The Birth Anomalies Network of India
Let's work together, so that every child is included... Every child matters, every child belongs.
A website for birth/congenital anomalies (congenital malformations, congenital disorders) and disabilities. For parents, researchers, clinicians, advocates, policy makers, organizations, media and everyone else.
Why BIND?
Every child with birth anomalies has different needs
Public health services exist, services are fragmented
Poor are the most vulnerable, most affected
Organizations offer services, often work alone
Effect of a Birth Anomaly
Why do we need the Birth Anomalies Network of India?
- Birth anomalies (birth defects and congenital disorders) affect 4 to 7 lakh babies in India every year.
- Several services are available for children with birth anomalies in India.
- The child screening and early intervention service of the Rashtriya Bal Swasthya Karyakram (RBSK) has over 11 000 mobile health teams conducting child screening at schools and pre-schools across the country. There are more than 350 District Early Intervention Centres for diagnosis and early intervention for children with selected birth defects.
- A wealth of specialized clinical expertise exists in the private medical sector.
- Medical professionals have established organizations for treatment and management of specific congenital disorders.
- Several NGOs are the mainstay of treatment, rehabilitation, and psychosocial support. CSR funding has often shouldered the financial support for treatment.
Despite these contributions, activities remain fragmented and in individual silos. The overall response is fragmented. A collective voice of all stakeholders is needed
to articulate the needs of children and their families, the required response, and identify strategies that are equitable, sustainable and support ongoing initiatives.
What is BIND ?
An alliance and collective voice of all stakeholders -- affected children and adults, parents, caregivers, families and siblings, clinicians, rehabilitation therapists, nursing professionals, researchers, professional organizations, non-governmental organizations and individuals involved in the field of birth anomalies
Vision
BIND will work towards an India where preventable birth defects are reduced, children and families receive timely, equitable, and quality care, and persons living with congenital conditions are included and supported across the life course.
Mission
To build and sustain a national network that strengthens collaboration, evidence generation, and collective action on birth defects in India.
Objectives
- Networking and Collaboration: To build a collective of NGOs, researchers, clinicians, professional organizations, rehabilitation therapists, parent groups, persons with lived experience, and advocates from across India.
- Identify shared objectives and goals of stakeholders.
- Evidence and Knowledge Generation: To promote research collaborations, with a focus on generating evidence to guide and support a sustainable, equitable and contextual birth defects service.
- Influence Policy and Advocacy: To use data to advocate for services, and for policies, programmes, and financing mechanisms related to birth anomalies.
BIND - Knowledge Hub
The BIND - Knowledge Hub is a collaborative platform that brings together available knowledge, published research and lived/field experiences of multiple stakeholders into a constructive agenda to elevate the visibility of congenital anomalies and advocate for care for children with these disorders and their caregivers.
Community of
Practice (Research)
A network of researchers working on birth defects
◈ BIND - Connect
◈ BIND - Cast
◈ BIND - Research
Knowledge
mobilization
Translating knowledge into action
Let's BIND (newsletter)
BIND-Posters
Connecting the
world
Information on global organizations working on birth anomalies.
(Coming soon)
Connect with Us
Email Address
letsbindindia@gmail.comSecretariat
Birth Defects Research Foundation
Pune, India
Phone
BDRF Director: (+91) 9172959236
BDRF Office: (+91) 9175457167
BIND: (+91) 9175447167
Scan to join
Volunteer
Research
WhatsApp – BIND
+91 9175447167
Disclaimer: The Birth Anomalies Network of India (BIND) serves as a collaborative platform that facilitates connections between organizations providing support for birth anomalies in India. BIND does not directly provide clinical, rehabilitative, or support services, nor does it endorse or guarantee the services offered by any listed organization. Mention of any organization does not indicate an endorsement.